HS Support
Your healthcare team can help you understand what hidradenitis suppurativa (HS) is and how to treat it. But they may not always know what it’s like to live with HS every single day. That’s why it can really help to learn from other people who have HS too. When you combine medical advice with real-life experiences, you get a more complete picture of how to manage your life with HS.
Your handbook for life with HS
A Patient’s Guide to Living with Hidradenitis Suppurativa in Australia serves as a valuable roadmap for all individuals affected by HS. It covers all stages of your journey from your initial symptoms onwards and includes information about access to treatments, the Australian healthcare system, daily living with HS and much more.
Our free guide was developed with support from Hidradenitis Suppurativa Australia and includes many practical tips and comments from people living with HS.
Learn more and download A Patient’s Guide to Living with Hidradenitis Suppurativa in Australia.
Hidradenitis Suppurativa Australia
Hidradenitis Suppurativa Australia is an Australian not-for-profit organisation dedicated to working together with medical professionals, patients, researchers and the general public to improve the lives of those living with HS. Whether you’ve just been diagnosed, are awaiting answers or have been living with HS for years — you are welcome to join the Hidradenitis Suppurativa Australia community.
Free monthly support group meetings are held on Zoom on the first Friday of each month at 5pm AEST. See the social media platforms or contact Steph Friend at [email protected] for details on how to register.
- Instagram: hidradenitissuppurativaaus
- Facebook: HidradenitisSuppurativaAus
- Private Facebook group: HidradenitisSuppurativaAus/groups
Other support organisations
International HS organisations
- HS Connect: A trusted patient-led organisation providing factual education, awareness and advocacy for HS. hsconnect.org
- HS Foundation: Offers a wealth of resources, including educational materials and support for HS patients. hs-foundation.org
Other patient organisations and support groups
- Chronic Pain Australia:chronicpainaustralia.org.au
- Pain Australia: painaustralia.org.au
- Patients Australia:patients.org.au
- Consumers Health Forum of Australia: chf.org.au/
You can also find related support groups and sites by using search terms such as dermatology, skin conditions, chronic skin disease, autoinflammatory conditions, rare diseases or stigma.
