We have a passionate team, dedicated to improving the lives of people with chronic disease.
Seth Ginsberg - Co-founder, President
Seth was diagnosed with spondylarthritis in the US at just 13. This inspired him to reach out to other sufferers to hear their voices and learn from their experiences. It was clear to him that, with more accessible, community-based support and a united voice, patient-driven health was achievable.
With that in mind, he helped to pioneer the world’s first online patient community for the millions of people worldwide suffering from arthritis, called CreakyJoints. Partnering with social entrepreneur, Louis Tharp, in 1999, the two co-founded the Global Healthy Living Foundation (GHLF) in New York. GHLF is now the parent organisation of GHLF Australia, Creaky Joints, CreakyJoints Australia and other patient organisations.
Seth now lives in Bangalow, New South Wales, Australia (Arakwal Country).
The title of Louis Tharp’s book, The Overachiever’s Diary, says a lot about him. His extensive career includes international public relations, advertising and marketing, the first out gay coach at the US Military Academy, a member of the Obama administration’s Army Education Advisory Committee, a member of numerous boards and much more.
Louis became a social entrepreneur in 1999, co-founded and acted as the initial funder for CreakyJoints, an international service organization for people with arthritis. In 2007 CreakyJoints became part of the Global Healthy Living Foundation, which he also co-founded.
Stephanie O'Connell - Head of Public Affairs GHLF Australia
Steph is a health advocate and health communicator with a career in public health and public affairs. She has worked alongside global leaders and some of the most prominent advocates for health and social change in the world.
Steph has been a cardiac patient for most of her life and became a vocal vaccination advocate when her daughter narrowly survived meningococcal (IMD), a vaccine-preventable disease, which resulted in a kidney transplant, courtesy of her sister. She is an advocate for health equity and preventative health.
Digital Assets Manager,
Naomi Creek - Digital Assets Manager, Patient Representative
Diagnosed at age 12, Naomi’s personal experience living with rheumatoid arthritis has made her a passionate advocate for others living with arthritis and chronic pain. She believes patients must have access to the right resources to understand their condition and feel empowered to manage their own health. She is a firm believer in a holistic approach to living well through healthy eating, regular exercise, medication and reducing stress.
Naomi has volunteered as a community guest speaker and as a patient representative in many roles. She spent 10 years leading the Young Women’s Arthritis Support Group (YWASG) in Melbourne and has been the CreakyJoints Australia National Coordinator since its inception in 2015.
Naomi lives on remote Flinders Island, Tasmania, Australia.
After being diagnosed with rheumatoid arthritis at age 37, Rosemary now lives with several chronic health conditions including ankylosing spondylitis, fibromyalgia and type 2 diabetes. She joined the Young Women’s Arthritis Support Group in Melbourne in 2008 and has been a co-leader of the group since 2014. Rosemary regularly liaises with other patients and patient support groups and has volunteered in many health consumer representative roles.
Rosemary has been the CreakyJoints Australia Editor and Feature Writer since 2015. She is passionate about empowering people with chronic illness and disabilities by making health information accessible and spreading awareness about a variety of health conditions.
Rosemary lives in Melbourne, Victoria, Australia (Boonwurrung Country).