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One App, Many Solutions: Supporting People Living with Chronic Conditions
One App, Many Solutions: Supporting People Living with Chronic Conditions
Our PatientSpot app helps you track your medications and symptoms, provides customised educational resources and can be used in health research. How could it help you?
by Rosemary Ainley, 25 August 2025
If you own a smartphone, you’ve probably got some health apps on there. Perhaps a fitness tracker, a government app for your health records, a pharmacy app, a glucose monitor or a wellbeing app of some kind? All of these apps are designed to help you better manage your health and it’s easy to see why they are so popular.
Having the time and energy to keep on top of all the things you need to do to manage your day-to-day health can be overwhelming, especially when you have a chronic condition such as psoriasis, rheumatoid arthritis or fibromyalgia. On top of that, finding reliable information about your condition and treatments can be confusing.
About PatientSpot
The PatientSpot app was developed by Global Healthy Living Foundation (our US-based parent organisation). Codesigned with patients, clinicians and researchers, PatientSpot is now used by over 45,000 people around the world with various chronic conditions. Around 5,550 of these live with psoriasis.
How PatientSpot can help you
The user-friendly interface allows you to enter your key conditions and medications, generate reports plus add notes in your daily journal.
Tracking features
Have you ever felt frustrated during your health appointments because you felt fine that day but your symptoms were in full flare yesterday or last week? Now you can show your healthcare providers the reports you’ve created over time. You’ll have something tangible to show your changes in areas like your pain levels, symptoms, functional ability, fatigue or sleep quality. You can also add notes to your daily journal.
Educational Resources
The app also gives you access to a wide range of educational resources relevant to your condition. Current resources include articles about specific conditions, new research and treatments, tips to help make your daily life easier, personal stories from others with your condition and much more.
(You can also send us your story about living with psoriasis so we can share it and help others like you. Contact us at [email protected])
Patient-centred research capabilities
PatientSpot distinguishes itself from other health apps by offering customisable features for research studies or care programs. Such features enable users — if they choose — to share combined outcomes and experiences with clinicians, researchers and policymakers, while keeping personal information secure.
About Patient Reported Measures
There is a global shift towards building better patient-centred care models. To do this effectively, patient voices need to be heard at every level of healthcare services, from communication between patients and healthcare professionals to designing national healthcare policies.
Patient-reported experience measures (PREMs) and patient-reported outcome measures (PROMs) are status reports completed by patients based on their perspective. They often take the form of surveys structured in a way that allows responses to be tracked and measured over time.
Patient-reported measures benefit everyone involved. Patients are empowered by the opportunity to have their experiences validated and recorded. They also have the satisfaction of knowing their input will help improve the quality of healthcare for everyone. Those collecting the information gain a better understanding of how their product or service impacts the people it is designed for — often gaining insights they had not anticipated.
For example, a hospital satisfaction survey might include questions asking patients to rate their experience of pain management on a scale of one to 10. Or researchers might ask participants to record changes to their symptoms during a clinical trial of a new treatment. Insights into patient experiences can complement information from clinical measures. The Australian Government uses PREMs and PROMs to inform their decisions on subsidising prescription medicines, revising health policies and more.
Using PatientSpot for Patient-Centred Research
In the US, the PatientSpot app is already being used by GHLF in two key ways.
- Personal use: Individuals can download the app and use it for their own tracking purposes and they can choose to allow their data to feed into the research studies they select.
- Customised projects: Customised versions of the app can be built for individual providers looking to measure the results of specific projects. For example, GHLF has built a version of the app for a clinic to use as a means of providing post-operative support for patients who have had a knee replacement.
In Australia, the global version of the PatientSpot app is available for personal use. However, we are planning to build an Australian version with local content and adapt it for Australian research and customised projects.
While the possible applications of the app are endless, examples of how we could use it in Australia to help people with psoriasis include:
- Adding all the resources in our existing Psoriasis Education and Resource Hub to the library of resources available to individuals using the app.
- Using insights we gain from people using the app to inform our submissions to get new psoriasis treatments added to the Pharmaceutical Benefits Scheme.
- Designing versions of the app for projects such as evaluating public outpatient care for people with psoriasis or comparing the experience of psoriasis patients in rural versus metropolitan areas.
(Could the PatientSpot app help your Australian healthcare project? Contact us via [email protected] to register your interest.)
Take control of your psoriasis journey with data-driven insights by downloading the PatientSpot app today. Available on the App Store and Google Play.
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